6 years and 2 months ago you came into our lives, I knew in my heart you would never leave but doctors tried to tell me different. You came again 3 years ago, this time you were horrible tainting a laugh, stealing a part of my little boys soul. But still doctors told me it was ok.
Last year you came for good, you showed yourself to the doctors, over and over, you shocked them in disbelief, Grayson was tainted with your name, but it was ok, my Superhero fought you, he started to kick your arse and although these last 2 months you have tried to take control again he is fighting you with every ounce of his being because he is AWESOME!
Wonder who this is ?
Today is Epilepsy Day around the world, today the 26th March people all over the world are showing their support for the great fight to stop this awful neurological disorder which effects over 600,000 people in the UK alone, that means 1 in 100 people are affected. Grayson being one of them.
I am not sure I can go into explaining epilepsy, it is so vast, there are so many different types that cause a huge spectrum of seizure types and damage as a result of them.
Grayson has had everything from what I am sure you all think a typical seizure looks like, to episodes that most people wouldn’t even notice including absent moments and hysterical laughing.
For me the Laughing was always the hardest, a noise which should only ever be of pleasure was tainted for us for many months and these seizures known as Gelastic took a piece of our little boy, they changed him forever and still to this day I can not accept that.
Today Grayson has mainly controlled seizures, they thankfully with his medication are not stealing much of him, but that may not always be the case, that is what is scary about epilepsy as it can evolve over night – one of Grayson’s closest friends is in this position currently, in the past year she has gone from a mild occasional seizure to now multiples everyday where she has pure fright on her face, a dreadful fear for us all.
So this is why Purple Day is so important! It may seem such a small thing wearing purple today, but it causes people to ask, to question and to be educated, that is why you are here reading our story now and if only one person is affected by what I write or donates a £1 I have helped with the battle to try to learn how to support those being affected.
Thank you for taking the time to read this post, if you have any questions please ask, we love questions, it’s how we learn and I have to end with saying I am so thankful for the support Grayson has received today online, how he has touched so many people’s hearts, that is a proud Mummy moment for me.