I don’t often blog about Grayson on here anymore, mainly because we have a designated blog Raising A Superhero which eventually I want to be a real hub for everything Special Needs. But I filmed a little video on his surgery last week and how scared Ashley and I were and wanted to share with… Read More
Two years ago today I was sat in a hospital corridor outside HDU at Kings Hospital in London, somewhere in that same hospital my 6-year-old little boy was having brain surgery. The day had been perfect, we had family time at Ightham Mote, but only an hour after getting home our lives changed. We were… Read More
Bye bye 2016! Although I am so thankful for what it brought it was one of the hardest years we have ever lived. Back at the beginning of the year our poor Superhero went into sensory meltdown, he did not stop crying for over 15 days and we could not figure out why. What came… Read More
It hits me. 8 months later. Just sitting watching TV. Just another US Drama, just another normal night, there on my TV, removal of a brain bleed, the brain all exposed, skull removed. It’s then it comes back, it’s then I start to cry, it’s then I realise that 8 months ago nearly to the… Read More
Sometimes when I need a Miracle, I look into my Sons eyes, and realize I have already created one – Unknown This quote is never more true than when I see Grayson, when I hold him, look at what he has achieved, what he has become. It is not always easy, I won’t lie, some… Read More
To watch your child suffer is not something anyone should have to experience, it takes a piece of your heart that can never come back, but when it becomes your everyday, although the pain does not lessen you learn to live with it, because you have to overcome and live! My Superhero has had a… Read More